In Low and Middle Income Countries (LMICs), healthcare financing for rare disease patients is a significant unmet need, often due to an under developed public health rare disease funding environment. Understanding the healthcare funding environment maturity of a country can provide valuable insights that can further enable access to rare disease patients. Building upon the global rare disease landscape report, 10 countries were selected (Argentina, Peru, Colombia, South Africa, Ghana, Morocco, Lebanon, Romania, Malaysia, Thailand) to provide a sample of LMICs health systems and their funding environments. Only 3 out of 10 countries had a medium level of public sector rare disease maturity, indicating there is work to be done.
但是,挑战仍然是确定最适合其卫生系统以及人口需求以及如何可持续采用的资金解决方案。必威手机APP在稀有疾病资助计划中有创新的机会,可以解锁新的资金来源以改善获取。此外,将来有一个有机会的多方利益相关者参与机会,在该计划中,资金计划可能会在有兴趣加强患者进入RD的不同政党之间共同创建。
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